Caring for a Loved One with an Advanced Illness

Doctor with Palliative Care Patient in Hospital

Caring for someone suffering from a chronic or advanced illness can be very difficult.

Suddenly you become inundated with information and instructions. Everyone has a different opinion, but no one has the answer you want to hear. We understand.

MJHS Hospice is dedicated to guiding you through this process on your terms. The resources in this section are a compilation of questions frequently asked by caregivers. We hope that we can be a source of support and clarity during this challenging time.

Need Hospice Care?

Contact 212-420-3370


Resources

Sick Woman in Bed receiving comfort care from nurse

Article

Levels of Hospice Care

There are four levels of hospice care. Depending on the level of care needed, you may be required to be transferred to an alternate care setting. Your level of care will […]

Nurse showing a smiling elderly woman information on a tablet, sitting together in a bright, cozy room with colorful decor.

Article

Getting Started with Hospice or Palliative Care

Whether you choose to continue curative treatment or transition to comfort-focused care, understanding the process and involving your loved ones can help you feel supported and prepared. Learn some common steps toward getting started with the process.

Patient sits with a nurse during a home health care visit

Article

Hospice and palliative care. What’s the difference?

Hospice and palliative care are two ways of helping patients with serious conditions. Both offer comfort and compassionate care and focus on improving quality of life by addressing distressing symptoms, which may include pain management. So what is the difference between the two?

Female nurse in scrubs reviews enrollment booklet with older couple, seated at a table, discussing care options in a bright setting.

Article

What to Expect When Enrolling in a Hospice Program

Enrolling in a hospice program is a significant step in ensuring compassionate, supportive care for yourself or a loved one when approaching end-of-life. Understanding the enrollment process can help ease concerns and provide a clear roadmap of what lies ahead.

Friendly nurse in blue scrubs standing beside a smiling elderly man in a wheelchair, providing support and encouragement.

Article

A Guide to Hospice Care

Hospice care, also referred to as comfort care, is a specialized level of support designed for you or your loved one if you have an advanced illness, a prognosis of six months or less and have chosen to stop curative treatments.

Smiling nurse in scrubs holding a clipboard and guiding an older man in a green polo shirt, sitting in a bright, modern space.

Learn More About Palliative Care - Article

A Guide to Palliative Care

Palliative care is specialized medical care designed to help patients manage the symptoms and challenges associated with a serious illness.

Article

Constipation: A Crucial Conversation in Hospice Care

Every patient receiving hospice care will encounter constipation at some point during their illness. Get some answers on what to do.

Advice and Information About Hospice Care - Article, Video

Navigating Pain Management in Hospice Care

Opioids are commonly prescribed in hospice care due to their effectiveness in alleviating pain and their versatility in administration. Learn more

Advice and Information About Hospice Care - Article, Video

How to Comfort a Loved One Receiving Hospice Care

Comforting a loved one receiving hospice care can be a profoundly emotional and uncertain experience. Here are some gentle ways to offer your loved one comfort.

Advice and Information About Hospice Care - Article, Video

5 Tips for Managing Pain Medications in Hospice Care

Witnessing loved ones in pain can be stressful for caregivers, but there are steps to improve comfort. Here are five tips for easing their discomfort at home.

Older man sitting on a yellow couch with a volunteer playing chess

Supportive and Specialty Care Programs - Article

How Volunteers Can Help Caregivers

Providing hospice care is a team effort. And volunteers, along with their Volunteer Coordinators, are an integral part of this effort.

Female presenting social worker consoling and caring for someone who is upset.

Supportive and Specialty Care Programs - Article

Social Workers–Breaking Barriers Since 1898

Social work has been a core discipline of MJHS Health System since its start in 1907. Social workers are an integral part of our interdisciplinary team, helping caregivers break barriers by providing support and connecting them to resources in the community.

Article

Protecting Your Loved Ones From Heart Disease

Congestive Heart Failure (CHF), also known as Heart Failure, is when your heart gets damaged and is not pumping enough blood to meet your body's needs. Learn more.

Diverse team of people gathering, sitting in circle, discussing

Article

Getting On The Same Page. The Family Meeting.

As a caregiver, you may often feel responsible for making all the health care decisions for your relative who is ill. This feeling comes from the great sense of love and responsibility you have towards your loved one. Including family members in conversations about treatment and goals will help facilitate discussions with the health care team and get everyone on the same page.

A child rests their head on their mother's shoulder; the mother looks down at the child and smiles

Article

Understanding Pediatric Hospice

Understanding Pediatric Hospice Can Be Confusing. We want to make it a bit easier by explaining what it is so you can understand what this kind of care includes and how it may benefit you and your ill child.

Young Woman Hugging Senior Woman

Article

Top 5 Myths About Hospice Care

Hospice care is for patients with a condition that gives them less than six months to live. Read the top 5 myths people have about the treatment option.

Young woman in bed suffering from cancer

Article

The Difference Between Hospice and Palliative Care

We want the best for our loved ones. This is why knowing the difference between palliative and hospice care and understanding which meets your loved one’s preferences is useful. While there are many misconceptions, neither palliative nor hospice care necessarily prolongs life, nor do they hasten death. So, what is the difference between the two?

Man Kissing Father's Head

Article

Is Hospice Care Right for Your Loved One with Dementia?

Hospice care is an excellent way to ensure someone with advanced dementia receives the comforting, specialized care they need. This article will help you understand your hospice care options. We aim to offer you the support you need while navigating this next stage in the care of your loved one.

Hospice Care Home Visit

Advice and Information About Hospice Care - Article

Does Medicare Cover Hospice Care?

Does Medicare cover hospice care? It seems like a straightforward question. Unfortunately, many family members discover that it’s challenging to find a simple answer when they start researching the Medicare benefits their loved ones are entitled to. We hope we can help.

Two Senior Women Comforting Each Other

Advice and Information About Hospice Care - Article

What to Say to a Loved One Who Is Dying

Hospice care can be an uncomfortable topic for many families. Find ways to ease the conversation with your loved ones today.

Father describing pain to his son

Advice and Information About Hospice Care - Article

Helpful Tips for Describing Pain

Pain is very subjective, and it is essential to recognize that no two people experience pain in the same way. This article will provide helpful tips on getting a loved one to describe their level of pain.

Nurse checking heartbeat of elderly patient

Article

Congestive Heart Failure (CHF) and You

Congestive Heart Failure (CHF), also known as Heart Failure, is when your heart gets damaged and is not pumping enough blood to meet your body's needs. Learn more.

Two Senior Men Sitting on Outdoor Steps

Article

Warning Signs of Dementia

Dementia can be a scary word. Learn about the early warning signs and what to do if you're noticing symptoms.

Mother and daughter reviewing photo album together

Advice and Information About Hospice Care - Article

9 Tips for Visiting Someone Receiving Hospice Care

There are things you can do to bring comfort and joy to a person in hospice. We pulled together the following tips from the hospice nurses, social workers, and clergy at MJHS Health System.

Elderly couple reminiscing

Advance Directives Options Available - Article

How to Talk to Loved Ones About Your End-of-Life Wishes

Conversations about end-of-life decisions are delicate, personal, and unique — and rarely, if ever, begun and completed in one sitting. One thing is sure, given the mobility of our society, the advances in medical technology, and the continuing cultural denial of death: The need for these conversations has never been more profound.

Will being written

Advance Directives Options Available - Article

Writing an Ethical Will: How to Get Started

Writing an ethical will can feel like an overwhelming process. How does one begin to summarize a lifetime of lessons and beliefs? Where should the focus of the message be? In this article you will find helpful exercise to help you on this journey.

Article

Must-Know Words and Phrases Related to End-of-Life Care

Navigating any stressful and significant situation requires effective communication and clear understanding. To help you better understand the various issues that may arise, both in a general and Jewish context, the list below explains the terms you are likely to encounter.

Nurse in Jeans Taking Notes During Home Visit with Middle Aged Couple

Advance Directives Options Available - Article

What is a Health Care Proxy?

A Health Care Proxy allows you to appoint someone you trust, like a family member or close friend, to make health care decisions for you if you lose the ability to make them yourself. Learn more.

Caregiver And Loved One Looking at Laptop

Advance Directives Options Available - Article

Advance Directives: What They Are and How To Make Them

Advance Directives ensure that your wishes about treatment will be followed if you cannot decide for yourself. Read about some of the most used advance directives.

Patient being guided through music therapy

Chronic and Advanced Illnesses - Article

The Role of Art & Music for Patients with Dementia and their Families

Visual art, music, and literature make the world we live in worthwhile. Enjoying the Arts enriches people's lives with dementia and gives them a creative outlet to express their emotions. Learn about the Role of Music and Art Therapy doe people with dementia.

Vietnam War veteran in wheelchair smiles beside a supportive nurse in blue scrubs, sharing a warm moment in a cozy indoor setting.

Article

Meeting Veterans Special Needs at the End of Life

Veterans deserve end-of-life support from a care team that knows how to support, uplift, and addresses their unique and unspoken needs. Unfortunately, the strength that served them so well when on active duty often prevents veterans from asking for help. Learn about how MJHS Hospice goes the extra mile for veterans in our program.